• After high school, Callie came to Brigham Young University (BYU) where she and I were roommates for one year. I learned so much from her during that time. The disease had already started to affect her balance and eyesight, so she needed help. I enjoyed being one of the many that helped her. Looking back though, she did so much more for me than I ever did for her. Her positive outlook and fun-filled life, despite having the disease, even now helps me to stay more positive while having SCA7 myself. I know my little sister Aubree feels the same way; she was her roommate for two years after my first year with Callie. In the end, Callie did not just have an impact on Aubree and me, but many, many others that knew her. Coming to BYU greatly widened Callie’s circle of influence in a significant way…

    At Carolyn’s funeral, my dad, Rick, was very impressed with all Callie had done to help take care of her mother, and he felt that she should be given some kind of a blessing or reward for herself.  With this on his mind, he suddenly woke up in the middle of one night with a strong and clear impression that Callie should come to BYU.  It was nearing the end of Callie’s Senior year, and most, if not all, admissions deadlines for the next school year had already passed.  This meant it would be difficult to get her accepted and enrolled.  My dad was a professor at BYU, so he was able to use his knowledge of the university’s workings to try to make this happen.  First, he spoke with people at the Admissions Office to see if this would be possible for Callie.  As he explained her situation, they sent him to the Accessibility Office where they handle the cases of those having special physical needs.  Going to them, my dad again explained Callie’s situation, and they were really impressed with her story and were confident they would be able to get her accepted.  They also assured my dad that they would be able to help provide her with all the tools she might need to compensate for her physical limitations and thereby do her best in her classes.

    Now my dad knew it would be possible for Callie to attend BYU and receive the extra help she would need with her schooling.  In addition, I was already going to BYU, and I could be Callie’s roommate and helper…something I really hoped she would want to do.  My dad then called Scott, Callie’s dad, to tell him about this idea.  He knew it would be hard for Scott to let Callie go so far away from home and to face the challenge of attending college with her limitations, plus Scott’s time with her was limited.  Also, this was going to be extra scary for Callie, leaving home, family and friends to go to an unknown place with failing eyesight and limited walking ability.  School would be challenging at best.  Despite these things my dad made the phone call and talked to Scott about the idea.  I also called Callie and tried to persuade her.

    Callie and Scott came back to my dad with the decision that Callie would come to BYU! This was really exciting news to me. The previous year I had attended BYU while living at home. During this time my high school friends had all gone different ways, and sadly, I was not making any new ones. It was lonely, but now super-fun and awesome Callie was coming! Our plan was to live in an apartment together (so much more exciting than living at home). I loved being around Callie, and I was very excited about it all. I hoped this would also be a really great experience for her too. In addition, my cousin Kayla, from my dad’s side of the family, was going to live with us. I found a great place for us to live called The University Villa. It was a large complex with many buildings, and they were primarily filled with other BYU students that had the same standards as us (i.e. members of The Church of Jesus Christ of Latter-day Saints). Half of the buildings in the complex were for girls, and the other half were for boys. The complex also had a pool and a couple hot tubs. A definite perk! As residents of this apartment complex we were part of a large singles church ward or congregation that sponsored many social activities for us to get to know each other.

    I know Callie had to be nervous. There was so much unknown, and the disease was going to make most everything harder. Callie remembered, “I didn’t know how it was going to all work out. I tried to imagine how I was going to do things. I didn’t have my classes yet, and I didn’t know where I was going to live. Mandee figured it all out. I just went up there and tried to have a lot of faith.”

    When Callie arrived at Provo, UT, we had to move and do a lot of things to prepare for the start of school. First, we moved her things into the apartment, and then she said goodbye to her dad and brother. It was sad, but she would stay close to them with many phone calls over the months to come. Next, Callie, my dad, and I walked to campus. We first went to the Accessibility Center to introduce her to the staff there and to make a plan for all her classes. They needed to figure out the help she would need. She had decided to study Spanish, since it was something she enjoyed learning and had a talent for speaking it.  The Accessibility Center put all her books on tape, gave her magnifiers and a computer that had special programs on it to enlarge everything (making reading easier). The Center even assigned class aids to attend her classes with her in order to take notes. Later, aids were also made available to help her take tests when that time came. Callie was grateful for all the help she was given, so she could obtain a college education. Of note, Callie was always a straight A student in high school, but at BYU she did not get all A’s. This frustrated her because she felt like it did not represent her true knowledge and ability. She felt that if she could see her tests and take them on her own, then she would have done a much better job than she did having to rely on someone else to read it to her and write answers for her. Again, she appreciated all the help she was given, but at times she longed to just do things on her own.

    By the start of school it appeared everything was in place for Callie except one thing – getting her to each of her classes. Callie still walked pretty good; in our apartment she did not need help. She was wobbly, but by using the walls she was able to get around just fine. Outside of the apartment, she needed help and preferred holding someone’s arm for balance. Her balance was not the only issue though. The light from the sun worsened her blindness, so she also needed someone to be her eyes and guide her. Using a walker was out of the question because she could not see well enough outside to actually use one. Also, she did NOT want to use a wheelchair!  She never used a wheelchair while attending BYU. Again, she preferred to hold onto someone’s arm for help.  We needed to find people to help her walk to school, each of her classes, and then back home at the end of the day.  With her schedule and mine, I would not to be able to help her every time. We decided to ask members of our church or young singles ward to help out. Callie was OK with this plan, even though she hadn’t met any of them. This is something I loved about her; she did not mind who helped her, and she was grateful for their help. When we met our large ward the first Sunday before classes started, we began to ask for help. A bunch of people signed up, so that we had someone to take her to campus, to each of her classes and home each day.  It was very inspiring to see so many people willing to help her out!

    School finally started and everything went fairly smoothly. I confess that the first day of classes I was super nervous that someone was going to forget Callie and she would be left stranded. This of course was before everyone had cell phones. That first day I prayed that everyone would remember their commitment to help her and that Callie would be OK and enjoy it all. Callie, on the other hand, was not worried; she remained optimistic and excited. It was a huge relief later that day when it was my time to walk her to a class that I saw her. She was where she was supposed to be! Amazingly, it all worked out great. Callie once told me the following about all those who helped her: “I have been able to become so close with a bunch of the people in the ward. Some of my closest friends in the ward are those that walk me to class because I get to spend time with them everyday. I am thankful for that.” This is one of the blessings that comes from this disease…growing close to those that help you.

    In general things continued to work out well, but sometimes people did forget to walk Callie to class. This left Callie in difficult circumstances. Like I said, this was before most people had cell phones. Some people had them, like Callie, but very few others did. Most just had land lines in their apartments. When someone forgot her, Callie usually had a hard time finding someone else. Most of the time, when those around her noticed she was left stranded, they would offer to help. Sometimes this was someone she knew, and other times it was other students, strangers, walking by that would stop and offer to help. She was always very grateful for those who helped her. Callie remembered, “One time I didn’t have a test reader because they forgot to come. Someone in the hall offered to help me, I didn’t [even] ask them. They heard me talking on the phone, and they just offered. Sometimes someone will forget to come take me to my next class. People in the hall will just offer to walk me. It really helps. BYU is so great like that.” For better or worse, this example shared was not a rare event, but it always worked out.

    There were some instances that were particularly difficult like when someone would forget to walk Callie home to our apartment. These were situations in which a stranger could not help. When it happened, she would have to turn to her cell phone and start calling people. Callie said the following about those frustrating times: “Sometimes you get sick of people helping you, and you just want to do things yourself but you can’t.  A couple of times I have had to call people to take me home, but I am so sick of people having to help me that I would just sit there for a while doing nothing because I got sick of asking people to help me. I just hoped that someone I knew would walk by.” One day I came home from school, and Callie was not home yet. She was supposed to have arrived home hours before me. Then she walked in the door before I could even call her, and I could tell she was deeply agitated. She explained how someone had forgotten to take her to class, and then she already missed most of the class before someone could help. At that point she did not want to walk into class late. Next, the volunteer to walk her home forgot, so she had to start calling people (probably after sitting for a while in frustration). Apparently, she had a hard time finding someone, and that is why she was so late and distraught. I got upset hearing this and was ready to go tell those forgetful people off! Callie would not let me though. She did not want to make anyone who helped her feel bad. Despite the difficulty of these situations, things always ended up working out. The Lord really watched our for her. I believe there were many praying for her, especially her dad.

    Everyday it seemed like Callie came home with a story from the day. Typically someone had forgotten her, or she had an embarrassing fall. Other times it could be a little miracle. She would often humorously recount these stories, as she loved to make others laugh. Once she fell when a boy was walking her to a class. She described herself dramatically falling right into a bush! Then there was a time when a good-looking and muscular boy was helping her to a class, and she awkwardly fell right on top of him! She laughed while telling these stories; she loved to laugh. Callie was so resilient, and she was able to bounce back from many hard things by using humor and maintaining an optimistic attitude.  She was such a bright part of my life.

    Our first semester together was busy and full of a lot of new things, and it was so much fun!!! School kept us busy of course, but the biggest part of our experience was the social. Every day was always packed full of fun activities. Our church singles ward had lots and lots of activities…every Monday, Wednesday and Sunday night, plus most Saturdays too. In addition, we went to church with these same people, and there we were all given callings to serve one another in various wholesome ways. We really enjoyed all the people there that we grew to know and love so much.

    In addition, we also did things with my family each week. Every Sunday Callie, my siblings, cousins and I would gather at my parents for a family dinner. Also, every Tuesday at 10am there was a campus wide university devotional at which professors, religious leaders, renowned authors, thought leaders, etc. would speak. Callie and I would meet up with my parents and siblings to hear the devotional at the BYU Marriott Center (where the devotionals were held and also where other events like basketball games took place). We usually sat close to the front since my mom was in a wheelchair. Afterwards, my dad took us all out to lunch. It was a real treat for all of us, and I have many great memories of us doing this. One time Elder Oaks, one of the 12 apostles, came to speak at a devotional; he personally greeted us and shook my mom’s hand.

    Callie also went out almost every week with Sister Freestone, our Bishop’s wife. When she and Callie first met, they discovered that they were related, second or third cousins. They became instant friends, and Sister Freestone was determined to help Callie in whatever way she could. She would come to our apartment to pick up Callie for their outings. They would go shopping, eat out, or whatever she had planned. Once, she signed them up for a knitting class for the blind; later they joined an actual knitting club. They were part of this club for a while. I remember Sister Freestone helped Callie do all her Christmas shopping and then wrap the presents with big beautiful bows. Callie was so thoughtful with her gifts. Aubree remembers Sister Freestone signing up herself and Callie to take a class on how to help the blind. She continued to help and serve Callie for all three of her years at BYU. Over this time these two women became close, like family.

    Callie was a very fun and social person. A few of her favorite social activities were hot tubbing, pulling pranks, and going to the Malt Shop not far from our apartment, for ice cream. She discovered the Malt Shop in the first year and continued to frequent it more and more regularly in the following two years. She loved ice cream! She would usually order a large malt (which was a whole lot of ice cream!). It was impressive how quickly she could consume one. She also bragged that she had never paid for her own malt. Those that took her would usually offer to pay, and usually is was a boy who treated. The few times that someone did not offer to pay, she would conveniently not have her money with her! In a picture collage at the end of this post you will see a classic picture of Callie in the hot tub with a malt in hand. She was so much fun to be around and made me laugh almost every day. I absolutely loved being her roommate!

    One part of the single life that was hard for Callie was dating. She was very beautiful and so much fun to be around, but she was already showing symptoms of the disease, so she did not get asked out on dates (at least not during our first semester together). I know this was hard for her. During this first semester I went out on several dates, met my future husband, and began to date him seriously. At the end of the semester when Callie went home for Christmas, she had the aforementioned conversation with Lance about dating and marriage. He had been worried that she would get married soon and move away for good. Callie reassured him by saying, “I don’t think I will. Boys are kind of afraid of me.”  Lance then asked, “So are girls afraid of me?” She responded, “I think so.” Lance then said, “Well then, after we die and during the Millennium, everyone will want to get a divorce to marry us.” Callie loved her brother, and she too remained hopeful and optimistic for a future day.

    This is one of my biggest regrets about my first semester with Callie because it put a distance between us that I did not like. When I went out on dates, Callie would be left alone. Our other roommate, Kayla, had come down with mono, so when not at school or work, she was always sleeping to try to recover. I went out almost every weekend, and I left Callie behind too easily. Although, I do know that some of our friends in the apartment complex would invite her to do things and she herself would also call people to come over. She was very social as mentioned. While I don’t regret going out on dates, I do sincerely regret not even trying to include her. Looking back I could have very easily gotten her a date, so we could double. There were so many good guys that would have gladly gone out with her, or, when Dave and I started dating, we could have included her more often than we did. I just left her too often and too easily. She was super nice and supportive about it, but I could see the hurt in her eyes.

    Shoulda, woulda, coulda… I should have done it, and Callie would have loved it! Our relationship could have been so much better and sweater…but I didn’t. I worried too much about my own future and didn’t help Callie like I should have. I should have trusted that as I worried more about others that needed me, it would have all still worked out OK for me. Callie was so patient and kind to me. I just feel bad that she was the “guinea pig” to help teach me these lessons.

    Over her three years at BYU Callie did get asked out on some dates. She made friendships with a lot of boys, and they were good and kind to her but never serious. Callie once told me, “Everyone at  BYU is either married, engaged, has a boyfriend, or is looking for a boyfriend. I have known ever since I came out here that I will most likely never have a boyfriend or get married while I am here on earth. It has been one of the hardest things to have all my roommates going on dates and getting engaged. I just have to sit back and watch. It gets hard, but it’s OK.” She deeply desired to get married and to be a mother. Although she knew she could not have these things in this life because of the disease, it still hurt when she was reminded of it. She maintained great hopes though to have these things in the next life. She would sometimes joke that when she died, she was going to date Alvin Smith, Joseph Smith’s really good older brother who died before getting married. Whomever Callie ends up marrying, he is going to be super lucky to get someone as awesome, through and through, as Callie! And her children are going to be greatly loved by her. I love imagining her this way.

    My husband, Dave, had the opportunity to get to know Callie pretty well with all the time he spent at our apartment during that first semester. He thought she was fun, kind and such a genuinely good person, and he was touched by her example and faith. He also helped walk her to school sometimes, and he even forgot her once! He still feels bad about it. Most importantly though, he believes that if it was not for Callie, he and I might not be married. Callie once spilled the beans to him that I really liked him, and this was just the encouragement he needed in order to keep dating me. We did include Callie a few times in our dates or activities. We took her to Salt Lake one weekend to see temple square and enjoy a live play at the Conference Center. Another weekend we took her to hike up to the “Y” on the mountain. Dave and I each held one of her arms, and together we all hiked the mile of switchbacks to the top of the “Y”. Once we reached the top and told Callie about the steepness of the mountain, she became quite nervous. She was scared that she was going to fall down the mountain to her death!

    Prior to the start of the second semester, my cousin, Kayla, our roommate, moved out to live with some other friends. This left two open spots in our apartment. My best friend from high school, Katie, moved in along with Callie’s cousin from her dad’s side, Melissa. Callie and I were both super excited to welcome them! Melissa was very close friends with Callie, since they grew up spending a lot of time together. During the first semester Melissa had attended BYU Hawaii and ran for its cross-country team. As the second semester was her off-season, she came to BYU Provo to live with Callie. These two cousins were two peas in a pod – two super fun peas!  They played so hard together. Katie was very good to Callie too. I am so grateful Melissa and Katie came! They took the fun we were having to a whole new level. The four of us had the best semester together!

    Here are some of the fun things we did. Early on in the semester we went to a fabric store and bought black pleather and hot pink fabric to recover our ugly plaid couches in the living room. Almost every night before going to bed the four of us would have a dance party. We also enjoyed a giant communal candy stash. There were many hours spent hot tubbing; I think Callie and Melissa went almost every day. I remember one weekend when Callie and Melissa came home at around 2 a.m. from hot tubbing. Another night, they had the idea to put a bottle of dish soap in the hot tub, so we did. The bubbles just kept growing higher and higher. They were probably four feet high, and Callie was standing there in the middle of the hot tub with bubbles up to her neck. Then she lost her balance and fell, disappearing. We all jumped in after her, frantically searching for her in the mountain of bubbles! These are just a small sampling of our many adventures that semester.

    In addition to playing hard, these two cousins worked hard at pulling pranks. Here are a couple I remember doing with them. First, we made a disgusting mixture of oatmeal. Callie then filled her mouth with it before we knocked on several doors of people we knew in the apartment complex. When greeted at the door, we indicated that we had come to say hi and visit for a bit. Callie would then pretend to feel sick, then gag, and finally throw up on the floor, spitting out the oatmeal mixture onto the kitchen linoleum. We got quite the reactions, especially when they found out that Callie had fooled them! Another time, Callie did a prank phone call just after the four of us returned home from a church party at a nearby park. Callie called our Relief Society President, Caroline, who had also gone to the party, and she said that she was lost! Callie explained that she had been left all by herself after a spat with her roommates, and now she was standing alone on a sidewalk. When Caroline asked where she was, Callie just told her that all she knew was that cars were driving by, she was on a sidewalk, and she thought there might be a stop light close by but was not sure. Caroline told her that she was going to call some people and then she would call Callie right back. When she called back, Callie then told her that she was just kidding. Caroline laughed and told Callie she just about gave her a heart attack! No one could get mad at Callie though; she was too sweet of a person!

    Callie made this semester together so memorable for all of us. Being around her and seeing her optimistic attitude, despite difficult challenges, made my own life perspective change. Once she was asked to give a talk on resurrection at church. It was powerful. It was humbling to watch her be assisted by someone up to the podium, and then we watched her give her talk from memory since she could not see to read any notes. I remember the congregation was extra attentive and eager to hear what she had to say. The spirit of the Lord was present. In her talk, she spoke of one day seeing her mom again but with a perfect body, and she spoke of her and her brother Lance also having perfect bodies together with her family in heaven, a body with which she could run and see again. She credited the possibility of all this to our Savior, Jesus Christ, and to His resurrection and atonement for us. I remember realizing that this is what hope, true hope, really is.

    Living with Callie, I got to see first hand just how difficult little things could be. I saw some of this with my mom, but Callie being my peer, really impacted me. She once told me how much she wished that going blind was not part of this disease. She said that loosing her coordination and balance were hard enough, but adding blindness on top of it made almost everything a struggle. One morning I sat and watched Callie as she clumsily and blindly poured herself a glass of milk for breakfast. Her hands were uncoordinated, yet she managed to keep a finger inside the glass to know when to stop pouring by feeling the liquid touch her finger tip. In the process, she accidentally spilled milk on the floor (not a little), and then, she tried to wipe it up which was also difficult for her. She left the kitchen a little discouraged. I let her do it on her own though because she did NOT want help with things that she could do on her own, even if it was hard for her. Everything seemed to be so hard. I also remember watching her on her mom’s birthday as she cried most of the day because she missed her so much. Then there were other times that she would share with me the struggles of her little brother; the disease was progressing so fast with him. On another occasion we were outside, and she noted how much she missed being able to see all the beauty of nature around her. Despite all these major struggles day by day, Callie was one of the happiest people I knew. She was so happy, and it was hard not to be happy when you were around her. She loved her family deeply, and she loved those around her. She loved life! The year I spent as Callie’s roommate, I grew, matured and learned so much from her. I am so very grateful that she came to BYU!

    My friend Katie expressed similar feelings of appreciation and admiration. She shared the following about her time with Callie: “My memories of Callie are very dear to me because she was such a fun and outgoing girl even amidst the struggles of dealing with her disease. The biggest influence Callie had on her roommates and the students around her was that she brought us closer together. Because of the help Callie needed, she got to know everyone who was willing to help and in turn we as her roommates met so many people. With Callie as my roommate that semester I would not have had the social circle that we had. She was the center of attention because of her dynamic personality and the help she needed. People loved spending time with her so it was easy to find those to volunteer. I remember Callie laughing a lot. She helped to lighten the mood when times were tough in college. One of my favorite memories of her is the image of her sitting in a hot tub with bubbles coming up over her head. Oh my goodness I love that girl. She made life happier and helped create closer friendships for all of us who knew her.”

    At the end of this semester and school year, Callie went home to Arizona for the summer, Melissa returned to BYU Hawaii, Katie went to live with other friends, and I got married to Dave. I could not be Callie’s roommate any longer. However, my sister, Aubree had just graduated high school, so she and Callie made plans to live together the next year. Callie ended up coming back to BYU two more years, completing a total of three years of college. At that point the disease became too much, and she decided to stay home in Snowflake.

    Aubree was a really great roommate for Callie. She also had the disease, but at this time she only had minimal blindness. Together these two cousins just enjoyed life and their college experience. In addition, they were assigned two other roommates that they did not know: Paige and Nicole. Nicole was an identical twin, and her twin sister, Carissa, came over to their apartment all the time. It was like having a fifth roommate. All of these girls were really good to Callie, and they made great memories together.

    That year the opening social at their apartment complex, The University Villa, was a pool party with a beach theme. There were paper palm trees and other decorations. Somehow these girls managed to take home a palm tree, and they put it in the living room next to a love seat. Very soon thereafter, they had the idea to hold a kissing contest under the palm tree. Whoever could get the most kisses on the cheek under the tree in a month’s time would win. The girls kept score on a poster board hung on the wall near the love seat and  tree. Tally marks were added next to each of their names after they got a kiss, and they were boldly flirtatious with the boys. If a boy came by, they would ask him for a kiss on the cheek under their tree. Aubree said that Callie would actually call the boys she knew to ask them to come give her a kiss. With her bold efforts, Callie won… But they all had a lot of tally marks!

    Another thing Callie, Aubree and their roommates enjoyed doing was throwing dance parties. Their roommate Paige was a DJ at the local skating rink, so she had a bunch of great dance songs. Before throwing a dance party, they would clear out the furniture in their small living room and kitchen, and then Callie would start inviting those living in the nearby apartments to come join them. Paige would play her music, and their small apartment would fill up with people dancing. Callie was really good at planning events like this. A picture of one such dance party can be seen below.

    As Aubree went out on dates most weekends, Callie would spend that time with her other roommates. Paige, the DJ, was a tall girl who loved basketball. Callie also loved basketball, a love she picked up from her brother Lance. Together, Paige and Callie watched many games together on TV. During March Madness, they made a giant tournament bracket with all the teams and then placed it on their living room wall. When the games were playing they would invite other fans to come over and watch with them. Usually, these invitations were extended to boys. Callie, Paige, their other roommates and the boys would compete to see whose bracket predictions were closest to the actual outcome. These were quite the parties, and there was generally plenty of pizza for everyone too.  Again, Callie was good at planning these parties and getting people together. A picture of their bracket can also be seen below.

    Nicole was also a great roommate to Callie, but like Aubree, she was gone during most weekends with a boy she was dating. Her identical twin sister Carissa, however, was usually at their apartment. These cute sisters were on the BYU cheer team. In build they were very short and slender. Carissa loved boys! She would often talk to Callie about boys and try to match her up. She would even take Callie with her to go to the boys’ apartments to flirt. Callie said it was scary though because it was hard for small Carissa to help her walk… The boys were real nice to Callie. They always tried to help her out in any way possible, and she often called them to help her with her Spanish, since most were return missionaries that had learned the language while serving abroad. Callie really enjoyed both Carissa’s and Nicole’s friendship.

    Callie and Aubree had a fun, playful and almost sister-like relationship. Interestingly, Callie found a service where you could have groceries delivered to your home. Her orders would be delivered to their apartment, and almost everything she ordered was candy. In fact she kept a large candy stash under her bed. This candy stash became famous, and she maintained it for the rest of her life wherever she lived. One time Callie’s cell phone stopped working and when she took it to cell phone store to be looked at, they found melted chocolate inside. And sometimes Aubree would wake up in the middle of the night to the sound of paper being crinkled and ripped, and then see Callie on the floor eating candy next to her bed. Knowing that Callie could not see well, Aubree would often sneak some of her candy (at times with Callie right there in the room!). Callie would sometimes hear the noise of the wrappers and catch Aubree in the act. She would get upset at Aubree with a big smile on her face, so Aubree did not stop doing it.

    Aubree also “borrowed” Callie’s clothes and played harmless pranks on her. Callie had a lot of cute clothes, especially with Sister Freestone regularly taking her shopping. At times Aubree would wear Callie’s shirts, knowing she probably wouldn’t notice with her bad eyesight. Sometimes Callie did notice though, and she would get mad at Aubree, again with a big smile on her face, so it did not stop Aubree. For fun and a shared laugh, Aubree would sometimes sneak Callie’s cell phone and put something embarrassing as the saved background. For example, she once put the word “flatulate.” Callie was never the one to notice these things; it was always someone else. Sister Freestone is the one that would usually catch these things, since she helped out Callie the most.

    Like any two girls that were close, Aubree and Callie would talk about boys and relationships. Once when Aubree came home from a date, she told Callie that she had kissed the boy on their very first date. Then Aubree proceeded to tell Callie how many guys she had kissed, which was a lot; she kissed guys pretty easily. Callie then told Aubree that if boys were not afraid of her, she would probably be just as liberal as Aubree with her kisses!

    After her Sophomore year at college, Callie went home to Arizona for the summer and then came back to BYU for a third and final year. This time she was roommates again with Aubree, but they had two new roommates – Diane (Aubree’s cousin from our dad’s side) and Diane’s friend Nicole (a different Nicole). As always being Callie’s roommate made life a whole lot more fun and happy.

    Diane remembers one time when she and Callie went to their neighbors’ apartments to visit and play a fun prank. Callie had a fart machine, and she hid it in her pocket. At the neighbors she pretended to have a stomach ache while they were talking, and then she began pushing the button. It was hilarious to see people’s reactions as they thought Callie was producing these horrible sounding farts!

    As in years past, Callie loved throwing parties. She was so good at getting large groups of people together for birthdays, holidays, and for just plain ‘ole fun. She continued to throw spontaneous dance parties. She and her roommates also visited the hot tub and Malt shop often since these were Callie’s two favorite things to do. Below is a picture of Callie in the hot tub with her Junior year roommates, and of course Callie has an ice cream shake from the Malt shop in her hand…classic!

    The fun was not limited to hot tubbing, ice cream and parties. They had good clean fun wherever and whenever they could. One of the pictures below shows these four dressed up for Halloween as pregnant exercise instructors! On another occasion I came across an old video that I put into a VCR player to see what show it was. It started out with Callie and Aubree dressed up as old, fat people; they were reminiscing about the good ‘ole days when they were roommates at the University Villa. Tears came to my eyes as I laughed at their hilarious comments. It was so sweet seeing these two together, being silly. Then Diane came wobbling into the room with a walker, followed by Nicole with a cane, also dressed as an old, fat woman, there to join in the reminiscing.  Knowing how skinny all four of these girls were made this skit even more funny to me. This video was for a “Grammy’s Night” activity their church group hosted. At the actual activity, everyone came dressed up in fancy prom dresses and then they watched each others’ videos. Below you will see Callie all dressed up at the Grammy’s with her date.

    At the end of her Junior year, Callie went home to Snowflake as usual, but this time she decided to stay home for good. The disease was making school too hard. Aubree loved her time living and rooming with Callie. Here are her words about their time together: “Callie was more than a cousin to me. She was my best friend, roommate, confidant, and loyal companion. She always made things fun, from talking to dancing to pulling pranks to hot tubbing or eating ice cream. We were always laughing. Helping and serving her daily created a bond of love so strong between us that when she moved back to Snowflake, I would catch myself still thinking of her and worrying about if she had someone to walk her to each class. I feel so lucky to have spent so much time with her. I love and miss her.”

    Callie did not just have an impact on Aubree and me, but many, many others that knew her. Many stayed in contact with her after she left BYU, like Sister Freestone, the knitting club, her roommates, and those she grew close to through all the service they rendered her, including some boys. Coming to BYU greatly widened Callie’s circle of influence in a significant way…

  • My cousin Callie has a powerful story.  I hope that what follows truly captures who she was and her example.  She has significantly influenced me.  She was part of my family and one of my best friends.  Remembering her while writing this has brought many tears, mostly happy ones.  I love her and am so grateful she was part of my life.  I know that there are many who feel the same way.  She touched so many lives!

    Callie was Scott and Carolyn’s first child.  She was followed by her brother Lance two years later.  Carolyn did mot have any more children since she was already showing symptoms of SCA7, and her health was only getting worse.  Despite Carolyn having the disease and later finding out that both Callie and Lance inherited it, this family of four was very happy.  It was so neat to see.

    Callie was a big help to her mom throughout her life.  She noticed her mom trying so hard to do the house hold chores yet struggling because of her failing abilities.  When Carolyn could no longer take care of and temporally serve her family, Callie saw the sadness in her mom’s eyes.  Callie understood that being able to do these things was a privilege and blessing. As such, when her mom needed help, she jumped right in willingly.  She enjoyed helping out, especially with the cooking and shopping.  She got a lot of satisfaction out of cooking tasty meals for others.  When she was only in the fourth grade, she would go to school on a Monday and tell all her friends about how she had cooked a grand Sunday dinner with things like meat and potatoes, jello, and sour cream cookies for dessert.  I know that cooking good food for others is something she loved to do all her life.  Also, it was a common sight to see Callie pushing her mom in her wheelchair at the local grocery store each week.  Callie memorized where everything was and became a great bargain shopper like her mom.  Another thing she had to do at a young age due to her mom’s disease was to do her own hair.  Scott helped with this, and he got pretty good at it.  But Callie learned quickly too.  By age nine she could french braid her own hair.  The other girl’s her age were so impressed.  She was a giant help to her mom and family.  While she took on big responsibilities for one so young, she felt joy in helping her family.

    Callie was a talented person, and she knew how to work hard.  She was a good student who got straight A’s and was in the gifted classes. She was gifted musically too and loved to sing and play the piano.  She was also good at sports and ran track in middle school.  She was competitive and did quite well.  Her running buddy was her good friend Domini.  They met in fourth grade, and they remained good friends all of Callie’s life.  While they were young, they had classes at school, took piano lessons and were on the track team together.  Dominic said that Callie always made her laugh, and they had a lot of good times together.

    Callie loved spending time with her family and extended family.  She loved the many Flake family get togethers, and she was close with the Flake family.  Callie and her family also got together with the Canfield side at least once a year, since they lived a lot further away. At these reunions, Callie, my sister Aubree, cousin Lisa and I would play nonstop.  The four of us had a blast whenever we got together.  Callie was definitely the center of it all.  She made us laugh a lot.  We had many sleepovers at Grandma Canfield’s, where we got to wear her fancy silk pajamas and wake up to Great-Grandma Gee’s french toast (so good!).  We had a couple reunions in Snowflake, one at Lake Powell and at our cabin at Bear Lake.  We had many priceless memories together for which I am so grateful.  Cousin time is seriously the best!

    The four of us being pulled by Eddie.
    The four of us doing a dance at Grandma Canfields.

    Callie and I loved our time together.  Between family get togethers we tried to stay in touch by writing letters.  One summer, her family invited me to come stay with them for a week.  I flew out there.  I remember being impressed with Callie’s cooking and shopping skills and how much she helped her mom.  While there, we rode horses and three wheelers, went on hikes, visited friends and family, and of course, went out for ice cream.  I was really into gymnastics at the time, and I remember doing my floor routine on their front lawn for the family.  Afterwards, Uncle Scott, Callie’s dad, got up and performed his version of gymnastics.  It was surprisingly impressive with all his twists, twirls, and “stick-it” landings.  He bragged that he had gone to the Olympics for gymnastics back in the day which according to him was in the early-1900s!  I laughed a lot and had so much fun during my stay there.  Their family had the best spirit in their home.  They were so happy and fun to be around.  I was sad to leave.

    Callie was close to her brother.  She once remembered, “Lance and I have always had a good relationship because it has always been just me and him.  We didn’t fight very often because we only had each other.  We spent a lot of time together.  He has always been a good brother that I look up to.  He is happy and just an amazing person.”

    It was very difficult for Callie to discover that her younger brother had the disease.  She was in sixth grade and Lance in fourth when her dad received a letter in the mail from the school nurse informing them that Lance had poor vision.  He knew then that Lance had the disease, and he told Carolyn of this.  However, they both kept it from Lance and Callie. They decided to have Lance’s eyes checked by a doctor to confirm their fears.  Callie was home with her mom while her dad and Lance were at the eye doctor.  She noticed that her mom was nervous and remembered her saying, “I hope so bad that Lance does not have this disease.”  At this point Callie realized that her brother possibly had this disease, depending on the outcome of this eye doctor visit.  She waited nervously with her mom. When her dad and Lance walked in the door, Callie could tell by the look on her dad’s face that Lance had it.  Lance was too young to realize what was happening, and he went to bed and fell asleep.  Her parents, with their broken hearts, got into the car and left for a drive so they could mourn in private.  They did not realize that Callie knew.  She was shocked and not sure what to think as her own heart was also breaking.  She escaped to the cedars behind their house.  She walked and walked for many hours as she thought about what it all meant for her little brother.  Knowing the struggles her mom was experiencing, it scared her to think of this happening to Lance.  She begged God over and over to take this horrible thing from Lance and give it to her instead.

    Callie remembers this time being very hard.  Lance would not realize he had this disease until a couple of years later.  He asked his dad if he had it, and Scott told him that he did. Lance was pretty distraught about it, and Callie remembers that her parents bought him a new bike to help cheer him up.  It worked, and Lance took on this disease without loosing his big smile on his face.  In fact, I think it just got bigger.

    Callie was very inspired as she watched Lance deal with this disease.  She said it was hard for him to start using a wheelchair, take special classes and ride the handicapped bus.  He just wanted to be seen as normal, but he took on these things with grace and a good attitude.  This touched Callie and many others.

    Sitting on the back row of her seventh grade Social Studies class, Callie tried to read the assignment written on the board, but she could not see it.  Her eyesight was getting worse. It suddenly hit her that she too had this disease; she just knew deep down inside that she had it.  She did not feel scared though.  She felt calm and reassured that is was going to be OK.  She considered telling her parents, but she knew it would devastate them, just like it did with Lance.  She decided not say anything about it to them or anyone else because she did not want people to feel sorry for her or treat her differently.  She just wanted to be normal.

    Interestingly, I remember a time when, after we all found out about Lance having the disease, the Canfield family went to Snowflake for a family reunion.  One afternoon, Callie, Aubree, Lisa and I were lying on the trampoline staring up into the grand sky.  We began a solemn discussion about the real possibility that we too could possibly have this disease, since Lance was undeniable proof that this disease could be passed on.  We were all a bit terrified by this.  I can’t remember what we all said, but I do remember feeling comforted that we had each other.  Looking back I now know that Callie already knew she had it, but she was keeping it to herself.  Later of course Aubree and I would realize that we too had it, so in reality we all had it except for sweet Lisa.  Even now, I still find comfort that we still have each other.

    Callie did not tell anyone about her worsening eyesight and with much effort kept it hidden for almost two years.  For example, at the beginning of her ninth grade year, there were basketball tryouts.  Although she really wanted to be on the team, she did not try out because she found out that a physical was required.  This would reveal her bad eyesight. Then at the end of the year there was cheerleading tryouts.  Her good friends were going to try out and she really wanted to do it too.  By this time her eye sight was getting to be pretty bad, and she knew that she could not keep it hidden for much longer.  As such, she decided to try out and get the revealing physical.  She had an appointment made, and her dad took her.  Her eyes were checked, and her vision had deteriorated so much that she could only see the top two lines of the eye chart.  After the physical, the doctor sat down with Scott and told him that Callie had horrible vision and very much needed to be seen by an eye doctor.  Heartbroken, Scott knew this meant that she had the disease and explained this to the doctor.  During this conversation, Callie started to cry, real hard, and could not stop.  It was like all the emotions that she had carried the past two years just came flooding out and could not be stopped.  When they got back to the car, she told her dad that she had known since seventh grade.  He was even more shocked by this confession, and he could see that she was trying to protect him and Carolyn.

    Callie continued to cry on the drive home and also when Scott told Carolyn.  She could see the devastation in her parents.  Her parents then told their families.  That same day, the bishop’s wife and Callie’s church young women’s leader came to visit and comfort her, and she still continued to cry.  She was so upset.

    Before school started her sophomore year, Callie and her dad informed all of her teachers of her poor eyesight and need for extra help.  This was necessary, but it was very hard for Callie to begin to tell people that she had the disease.  She did not want them to treat her different.  So much so that she still did not even tell her friends.  That year they began to notice her bad vision, yet they did not say anything about it since Callie did not mention it.  They also noticed her balance getting worse.  Lance had already begun to use a wheelchair at school, and they also knew her mom.  Clearly they new about the disease, put two and two together, and realized that Callie also had it.  Although they did not talk about it, it broke their hearts.  They watched Callie’s example as she went about life with a smile on her face and a great love for life.  She was loved by many.

    Callie did make the cheer team, and she was very excited about it.  Her brother Lance’s great love of sports had influenced her, so she really loved the Snow Flake Lobos too.  One friend called her the Lobo’s number one fan, so of course, she was pumped to cheer for them.  In fact, she ended up  cheering all three years of high school.  She thought that the disease would make it too hard to do it more than a year.  Her first year of cheer, the disease affected her balance very little.  Through hard work and persistence she became good at it.  Her smile and enthusiasm were infectious, and she had true passion.  Her passion and hard work helped her to do well through to the end of her Junior year.  By that time though her balance was becoming a lot worse.  She had even fallen once during a dance performance.  As an aside, at this time when she walked, she was off-balance and would stagger, and in the months to come, she would even have to hold on to someone’s arm for help walking.  As such when trying out for cheer for her Senior year, her decline in balance had become very noticeable.  She tried so hard, but she was very disappointed with her performance.  She was certain that she would not make the team.  The results of who made the squad were to be posted late that night.  The girls all stayed up, but Callie sadly went home to bed, not wanting to await the results.  When it was posted, Callie was on the list!  The girls all rushed to tell Callie; they woke her up and excitedly jumped on her bed telling her she made it.  Callie was so happy, and everyone was so happy for her!

    Callie grew close to her cheer team, and they had many good times together.  For example, on the bus rides for away trips, Callie would get them all laughing with her perfect impersonations of Lloyd from the movie “Dumb and Dumber.”  When they would stop for dinner, the team would often tell their servers as a joke that it was somebody’s birthday.  One particular night, the server brought out a birthday dessert, and they all joined in singing “Happy Birthday!”  Callie started singing the loudest and really got into it.  The next thing she knew the server placed the dessert in from of her, and she realized the joke was on her that day.  She blushed and smiled real big as everyone burst out laughing at the hilarious situation.  They all enjoyed the time they had with Callie.  It was so neat that she could still be on the cheer team despite her failing abilities.  Callie fit right in, and the girls were really good to her. Callie helped to bring their team closer together.

    Callie had two best friends throughout High School: Domini and Felicia.  The three of them had a lot of fun together and were inseparable.  Domini was the first to turn 16 and get a car.  They all loved driving together around town with the music blasting, singing along at the top of their lungs.  They also got a kick out of doing funny things together like going through a drive through to order hot water with ice!  At Callie’s many requests, they would go to Dairy Queen for ice cream.  She LOVED ice cream.  Another of their favorite activities was to dress up and make videos.  They specialized in cooking shows and exercise videos.  Callie was good at getting into character; she was so funny!

    Callie was a very sweet girl who seemed to be soft-spoken and shy, but when you got to know her, she would surprise you with how funny and fearless she was.  She and Felicia loved singing and participated in the school choir.  One day there were auditions for a solo. The song was a gospel rock number that they poked fun at, and Felicia dared Callie to try out.  Callie boldly went to the front of the class to do it.  When it was her turn, she purposely made it sound horrible.  She sang real loud, off-key and even put her body into it.  The whole time Callie kept a straight face.  She really was fearless.

    Callie was famous for her poems.  They were funny, clever and sweet.  Often her poems were signed, “Calcutta,” a nickname given her by her two best friends.  Throughout high school she would write poems on a regular basis for someone to help brighten their day. While her writing truly did brighten many lives, in the end, it was really her example that most lifted those around her.

    Callie was a great party planner.  She made long lists of really fun things to do for her and all her many friends (boys and girls), and her friends would tease her about these lists.  On the weekends, they would ask her, “What are we going to do?” and together they would pick something from her list.  They did fun activities like having a bon fire by burning a cedar tree, playing night games, making forts, and riding four-wheelers and horses.  The girls would have sleepovers in Callie’s barn.  Of course, many of things on Callie’s lists were pranks.  She was quite the prankster.  The Flake family is very good at its pranks, and Callie lived up to her family name quite well.  Here are some of the pranks Callie helped plan and do: penny tapping, toilet papering, car soaping, gluing coins to the floor in front of school vending machines, setting off car horns during school or stake dances by propping a stick between the steering wheel and driver’s seat, putting chickens through the window of the school during a dance, and tying people together with thread at school dances when the lights were low.  Of note, she was also very good at prank phone calls. Typically she would go by the name of “Sophrina” for such calls.  She made a lot of people laugh, and knowing that sweet Callie was the instigator, made it even more funny.

    Callie was such good person, deep down to the core.  One way this was apparent was in her choice of media.  She loved to watch wholesome TV shows like “Little House on the Prairie” and “Touched by an Angel.”  Her favorite movies were Disney and musicals.  Even the music to which she listened was inspiring and clean.  Another evidence of her goodness, was the way she treated others.  She was so kind and loving.  Also, she could not tell a lie and was fiercely obedient to God’s commandments.  For instance, when Callie and I were just in High School, along with my sister Aubree, the three of us went on an Alaskan cruise with my parents and Grandma Canfield.  We had so much fun on that large cruise boat and became well-known among the passengers as we were some of the only teenagers and were constantly going about the ship playing, nonstop.  One day my dad told us that we could order the drink of the day since it was a free, non-alcoholic fruit cocktail.  That evening there were family friendly entertainment shows and the three of us went and sat down, waiting for the show to begin.  A waiter came by and asked if we would like a drink.  We said we did and ordered the drink of the day.  He brought us out what looked like hot chocolate with whipped cream and chocolate shavings on top.  We had never had a fruit cocktail before and were confused since it did not look fruity.  We took a sip, and it burned our throats as it went down…not because it was hot though.  We looked at each other, shocked as we realized the drink was alcohol!  We ran outside and began spitting what we could over the rail into the ocean.  This was the first time any of us had tasted alcohol.  Callie was furious!!!  She marched back in, found the waiter who had given us the drinks, and began to chew him out for serving us alcohol when we were obviously under age.  For the rest of our trip, it took a lot of convincing from us and my parents that she did nothing wrong.  I was amazed by Callie’s great desire to be obedient and have always admired her unshakable testimony of the Gospel of Jesus Christ.

    Line dancing with the older passengers

     

    Despite poor health, Callie’s mom was still a big part of her life.  By the time Callie was in High School, Carolyn had become too weak to do much.  Callie would find her mom sitting somewhere or lying in bed when she came home from school.  She would go to her to tell her about her day.  Carolyn was a great listener, and she would get so excited, even about the little things.  She wanted to hear all the details.  In particular, Callie’s mom liked hearing about her dating life.  Callie was a beautiful blond cheerleader, and she always had a date for school dances.  Whenever Callie was asked to a school dance, it was the most exciting thing for Carolyn.  Callie cherished this time with her mom and knew that her mom dearly loved her.

    One day during her Senior year, Domini was driving Callie home from school, and Callie told Domini that her mom was not doing well.  Carolyn had become so weak that she could no longer eat or drink.  A short time later, during the night, Carolyn’s breathing became irregular.  Early that morning, Scott, Callie and Lance all gathered around her as she passed peacefully away.  At this time of grief, Callie’s many friends all came together to help her through this difficult time.  The  morning her mom passed away, they all gathered at the school to offer a prayer for her and her family.

    I know it was very hard for Callie to lose her mom.  She missed her so much!  A couple of months after Carolyn passed away, Callie was sitting in English class when they announced over the intercom the prom queen and king nominees.  She thought she heard her name but was not sure, so she asked around.  When she found out that her name had been listed, she could not contain her emotions and asked the teacher if she could go to the bathroom.  When she got there, she burst into tears because she could very clearly see her mom shouting for joy and telling everyone.  Callie did win prom queen, and she knew her mom was overjoyed for her.

  • Lance had an exceptional high school experience due in large part to many wonderful people around him that greatly enriched his life.  This disease progressed quickly for him, since he got it at a young age.  He lost his eyesight and grew weaker a lot faster than his mom did for example.  As a result he only lived one year beyond his high school graduation.  Through it all though Lance remained happy and loved his life, and he continued to make those around him smile and laugh.

    Lance not only loved to tell jokes, but he also loved to tell a good story or pull a prank to make people laugh.  His dad, Scott, had many, many pranks that he had done throughout his life that Lance loved to tell.  But like his dad, he also enjoyed thinking up a good prank.  In my opinion, the pranks he pulled were hilarious.  Here are a couple of classics.

    Lance enjoyed pulling one particular prank that he called “wheelchair tipping.”  With the help of his friends, he would have his wheelchair tipped over next to a main street or in highly public areas.  Then he and his gang would hide nearby to watch people’s reactions. One time Lance went with his cousin’s family to visit the Rim Trail between Pinetop and Wagon Wheel where you can take a paved trail to look off the edge of the rim.  His cousin Max put Lance in his wheelchair and the two ran ahead; they saw a perfect place to pull a prank.  Max helped Lance sit behind some bushes nearby and then took his wheelchair next to the cliff edge and tipped it onto its side.  They both watched and laughed from behind the bushes as they watched people walk up to the scene.  Hikers would see the empty wheelchair then peer over the edge.  They caused a lot of anxiety.  When Lance’s Aunt Loraine came, she immediately said, “Boys, come out from under those bushes.”

    On another occasion the large Flake family was all together for the Thanksgiving holiday.  That evening, many of them were up in the cedar hills roasting hotdogs and marshmallows.  Someone had the idea to go a little further up to a big culvert that was full of 20 years or so worth of tumble weeds and light it on fire.  They knew it was going to be big but safe.  It was about 10pm when they lit it, and it turned out to be much bigger than expected.  If you were in town, it  might have looked like a volcano erupted.  The whole mountain was aglow.  The weeds burned quickly, and it was over in 5 min.  From their view on the mountain, the family could see that fire trucks were coming in response to the blaze.  Fortunately in this case, it took the fire fighters a bit to get there, and when they did, everyone had dispersed and was gone…except for Lance, who deliberately stayed behind.  He was siting there in his wheelchair by himself, roasting a hotdog.  The firecheif questioned Lance who wore his classic mischievous grin on his face.  They knew they were getting nowhere with him so they turned around and left.

    Another funny thing that Lance liked to do was to wear t-shirts that said funny things. He had one that said “Babe Magnet.”  He was quite the charmer with the ladies; he had a way with the girls.  At school he would whistle at them from his wheelchair and say something like, “You have nice ankles.”  They would laugh and respond with, “Lance, you can’t even see my ankles.”  All the time with Lance and that classic grin on his face.  He was always respectful yet funny and kind with the attention he gave them.  The girls in return were very good to him.  They made sure he had a date to all the school dances

    The high school sporting coaches and teams were really good to Lance too.  They tried to help him participate in whatever way he could.  For football he got to sit on the sideline with the team for the games.  He also got to participate in the halftime pep talk in the locker room.  He even got a jersey and was part of the team picture.  The boys on the team were all really good to him and tried to share the limelight with him.

    The basketball team was also good to Lance.  He loved cheering at their games and most especially enjoyed bad-mouthing the refs.  He would often yell at them.  In fact, it was Lance’s dream to get kicked out of a game for bad-mouthing the refs.  Scott was friends with one of the referees, and they set it up for Lance to get kicked out of a game.  Even the team was in on it.  During the game, Scott helped to encourage Lance in his bad-mouthing the refs for all their bad calls.  The ref played along by being upset with Lance and giving him warnings.  This encouraged him all the more.  Eventually Lance was given all his warnings, and he was kicked out.  The ref pushed him off the court with Lance wearing a great big smile on his face.  The entire audience saw what happened, and not knowing about the plan, began to boo loudly as he was being pushed out.  Lance was a most beloved fan.  Shortly thereafter they brought Lance back in, and he was received with a standing ovation.  He was then presented with a “number 1 fan” shirt by the team.  This was a title that he more than deserved.

    Lance throughly enjoyed being a part of the Snowflake high school teams, but his involvement in sports did not stop there.  He watched sports on TV whenever he had the chance.  With his great memory, he was able to remember all he watched and heard.  He was a sports expert.  He could speak intelligently about college and pro sports, even less popular sports like hockey.  Once his uncle had some friends at work who were really into Fantasy Football.  They asked his uncle to be apart of their league.  He went to Lance, and got all his picks and trades from him.  He was so successful that his friends kept saying, “You are so lucky!”

    Lance loved March Madness.  He couldn’t wait to hear the announcement of the 64 teams.  He would have a giant blank poster put up on the wall, and with the help of others he would then have them written on the poster in their coordinated brackets.  He would then have contests with his family and friends on who could most accurately predict the winning teams.  With his vast knowledge of the various teams, he usually did pretty well.

    Lance’s love of sports ran deep.  Just a couple of weeks before he passed away, he couldn’t sleep all night one night because he couldn’t wait to hear about the NFL draft.  And then once he did hear, he spent the next two days cussing the Houston Texans for their stupid draft pick.

    Lance was a popular kid that so many people liked to be around.  He also liked being around them.  His dad built a barn on their property, and Lance enjoyed inviting everyone over to it for parties.  When he wanted to have a barn party, he only had to make one phone call to his cousin Kate Denhalter.  She would get the word out, and a huge group of people would show up.  There would be a big range of ages, but Lance throughly enjoyed it.  They would talk, eat ice cream, play games, and, Lance’s favorite, light fireworks.  He LOVED fireworks!  They always did fireworks…a whole bunch of them.  He really knew how to throw a super-fun party.

    Lance loved his friends and most especially, their visits.  As the disease progressed, it became harder for him to get out, so his visitors became very meaningful to him.  There always seemed to be a car parked at their house.  Many kids in Snowflake helped Lance to have a wonderful and fulfilling life.

    Lance lived his life to the fullest despite all his physical aliments, and here is a list of things he loved to do:

    • Houseboat vacations on Lake Powell
    • Fishing…caught a lot of fish with Elden Blair
    • Video games
    • Camping in the cedars
    • Fireworks
    • Spotlighting rabbits with the four-wheeler light
    • Riding four-wheelers, go-cars
    • Bugling elk
    • Skydiving…he went twice
    • Swimming in the ocean
    • Parties in the barn
    • March Madness
    • Sporting events of any kind
    • Sports stats keeping
    • Wearing funny shirts
    • Telling jokes
    • Pulling pranks…pulled a lot of pranks
    • Dancing
    • Smile…seemed to always have one on his face
    • Seminary and bantering with the teachers by bashing BYU, not because he didn’t like BYU but because it raised so much emotion within loyal BYU fans
    • Memorizing scripture…his seminary teacher said he was a scriptorian and master at the scriptures

    Lance had an inspiring spiritual side.  Since he was blind and wheelchair bound, he couldn’t always say his prayers in secret.  Scott often heard him saying them.  Lance would always thank Heavenly Father for all his blessings.  That was a humbling thing to hear coming from someone who struggled so very much.

    One time his dad caught him saying a prayer while he was in the bathtub.  His right arm didn’t work too well, so he reached over with his left arm and picked it up, folded it across his chest, then bowed his head.  Scott waited on the bathroom counter and when Lance’s lips stopped moving he asked, “Lance, were you praying?”  He didn’t realize his dad saw him, so with a sheepish grin he replied, “Yeah.”  “What were you praying for?” his dad asked.  “That your knees would get better,” he responded.  Wow!  He was praying for his dad’s knees while he himself was so crippled that he needed help to take a bath and had one arm that didn’t even work well enough to lift across his chest.  I think this is a great example of being selfless.  Scott said that Lance mostly prayed for others.

    Lance was able to bless the sacrament at church one month before his mother passed away.  It was a moving experience for all who were there to witness it.  The other priests had to help Lance from his wheelchair to the sacrament table bench.  They then helped him onto his knees, so he could kneel to say the prayer.  He had memorized it, since he could not see the words to read them.  He recited it perfectly.  Everyone was so moved that it was silent as the sacrament was passed.  The spirit was so strong.  The speaker who was assigned to give a talk could hardly speak.  He said that he had never felt a feeling like that in a sacrament meeting, ever.

    About a couple of years after Carolyn passed away, Scott met and married a most wonderful woman, Sarah.  She helped to care for Lance the last year of his life.  She was very good to him, and they formed a sweet bond.  She was so good at helping him that he often called out for her to come help him with his needs instead of Scott.  Scott was and is really grateful for Sarah and for all she did.  It was very hard for her to watch Lance struggle so much with this disease.

    After Lance graduated high school, he began to become very weak.  Eating became more difficult.  He became very thin.  He didn’t have the strength or desire to eat, but he knew he should.  At times he would call out, “I need to eat something.  I need to eat something.”  They would give him something to nibble on like a piece of licorice.

    He spent most of his last days in the living room on the La-Z-boy, so he could be around when anyone came to visit.  At one point the family thought he was close to passing away, and then out of nowhere he came back around.  One of his friends came to the door, and Lance called out to him.  He was not very responsive, but he surprised everyone once in a while.

    Eventually, hospice came to help.  When the nurse first got there, she could tell he was in pain and put a catheter into him.  His bladder was full, and she said out loud, “My goodness, he has peed a whole liter.”  He had not been responsive the whole day until later that night a couple of Lance’s friends came to the front door, and Lance called out, “James, Mitch, guess what?  I peed a whole liter!” and then laughed about it.  He then gave them some relationship advice about their girlfriends.  This was only a couple of days before he passed away.  He just kept living until the very end.

    The night before Lance passed away, he had a period where he would breathe and stop, then start breathing, and on and on.  Scott was alone with him on this night.  As a loving father he could see Lance’s struggle, and he had come to the point where he was ready to let him go and be released from his suffering.  Still he could see that Lance was fighting to stay alive; he was holding onto life.  Lance could not be hurried along, but he would go on his own terms.  The next morning they brought him into Scott and Sara’s room along with Callie.  At 10am he died, and his family was around him when he passed away.

    After Lance had graduated high school, all of his cousins and friends left on missions for the Church of Jesus Christ of Latter-day Saints, and he very much wanted to go himself.  It was hard for him to have to stay behind.  Now Lance left everyone else behind as he left to serve a mission for his Savior Jesus Christ.

    Scott spoke at Lance’s funeral and shared a beautiful poem in part of his talk.  I have also included his closing remarks below it.

    Poem by his father:

    A Turn With Lance

    • To those who grabbed his shoulder and saved him from a fall
    • To those who stopped and opened doors or pushed him down the hall
    • To childhood friends who let him play the game and didn’t really care
    • That he had to be the quarterback and throw from his wheelchair
    • To those who called him on the phone and listened patiently
    • As he told in perfect detail of a game he could not see
    • For those of you who ran into Lance, or perhaps he ran into you
    • For those who grabbed his knee and said, “It’s me Lance. How are you?”
    • For those who sat by Lance at games and helped him see it all
    • And helped him yell in the right direction when a ref made a bad call
    • For those who showed up at the house to take Lance for a ride,
    • or chase the bunnies on the quad and had the guts to let him drive
    • For those who found him jerseys for every game day
    • and helped him be a Lobo, even though he couldn’t play
    • To pretty girls with tender hearts  watching out for Lance
    • and made sure he went to formals and the homecoming dance
    • To his sister, who with perfect love would finish everyday
    • by telling Lance she loved him in a funny Spanglish way
    • He didn’t know your body type or the color of your skin
    • He only knew you for your kindness that you showed so freely to him
    • So many loved him and served him. And if life is indeed a dance
    • Aren’t we all a little better because we had a turn with Lance

    “I am so grateful I had a turn with Lance! I use to tell him that we were friends in the pre-existence and somebody flipped a coin and I got to be the dad and he got to be the son.  And that when we got together in the next life it would be just the same.  I don’t know whether that is true, but I connected with Lance and he was so easy to love.  I was elevated, being his father and I am so grateful for every minute, every opportunity and consider it a privilege.  I will miss him in this life.  I will miss his sense of humor and everything about him.”

    “I express my love to all of you for helping us get Lance through 20 years of what I consider to be [in] fine fashion.  Lance was suffering at the end, but he wasn’t ready to go yet.  I didn’t know how he could keep living.  He loved life.  It is a tribute to this little community and all the good people and teachers.  I can’t name all the people who made it all work for Lance.  I express my love to you and my testimony of the gospel that promotes these kind of feelings and behaviors in all of us.”

    Lance’s Cousin, Max Eddington, wrote a song about Lance.  It is beautiful.  It always touches my heart when I listen to it.

  • My cousin Lance has the best life story. I have throughly enjoyed writing it and remembering him. It will bring tears to your eyes, yet also make you laugh out loud. He was the type of person that inspired others. His life was fairly short, yet he lived it to the fullest with an infectious positive attitude. Thank you to Lance for leaving us such an awesome example.

    Lance was born in Mesa, Arizona to his loving parents, Scott and Carolyn. At the time Scott was attending college, so Carolyn stayed very busy taking care of Lance and his older sister Callie. As mentioned in previous posts Carolyn was just beginning to show signs of SCA7 before her children were born, so they both grew up with  their mom having bad eyesight and balance and coordination problems. Despite this, their family was happy and enjoyed life. Their home was full of love and laughter. Lance definitely played a big part in bringing in the laughter…and the love too.

    You might be a redneck…”If your dad walks you to school because you’re in the same grade.” “…if you’ve ever cut your grass and found the car.” …and “if you see a sign that says ‘say no to crack’ and it reminds you to pull your jeans up.”

    Did you hear about the carload of BYU coeds who froze to death at the drive-in movie? They went to see the movie, “Closed for Winter.”

    Lance loved to make people smile and laugh. He always had a good joke to tell. Scott remembers that when Lance was a young boy, he enjoyed telling a particular joke that he didn’t even understand himself. Lance told  it because it got such a good laugh. He became very good at joke telling. He had an excellent memory for all the details and knew which jokes got the best laugh.  He also enjoyed a little shock-factor, not vulgar or anything, but things that would surprise and tease people. This is probably one reason why he seemed to enjoy telling “you might be a redneck….” jokes in his small town where there were a lot of people who had a little bit of a redneck in them. As well, he also enjoyed telling BYU coed jokes to avid BYU fans like his high school seminary teachers. He was such a funny kid.

    I remember when I was young and attended Canfield family get togethers, Lance was often the center of attention. He was the youngest of the cousins, yet he could make us all laugh.  For example, once when we were camping in Snowflake, the boys were in one tent and the girls in another, and we (the girls) could hear all the boys laughing at Lance’s jokes into the night. Some of the boys were, including my brothers, 5 to 8 years older than him, yet they all loved being around him. He was so much fun. This was a great gift he had.

    Even from a young age, Lance was popular. When he was around four years old, Scott arrived home from school, and the neighbor kids excitedly ran up to him. They told him how great it was that Lance had gotten them all ice cream. Scott learned that when the ice cream truck came through their neighborhood earlier that day, Lance had run in the house to find money. No one was home, but he happened to find a ten-dollar bill so he then treated all the neighborhood kids to some ice cream. He has always treated those around him well.

    Another attribute that he was born with and that remained with him all his life was his love of sports. As a baby, he loved balls, and seemed to know that there was something more to them, like a game.  As a little boy he loved basketball and spent a lot of time dribbling and shooting. His Uncle Steve remarked that he had never seen a boy so ambidextrous at dribbling the ball behind his back and through his legs. He was a good little athlete and worked hard at it. He played on little league basketball and baseball teams and enjoyed it.

    Lance was a healthy young boy, and his parents had high hopes and dreams for him.  When Lance was in fourth grade, Scott had gone out one evening to get the mail and found a letter from the school nurse. Curious yet nervous, his heart began to race as he opened it. It said that Lance had failed the school eye exam and needed to get his eyes checked. Dread swept over him and tears began to fall. He knew that this most likely meant that Lance had inherited the disease. Their hopes for Lance’s future came crashing down. Now, he would have to face the trials of this disease at a young age, and it was going to progress quickly. Scott took some time to recoup before he went home and privately told Carolyn. They both wept.

    An optometrist confirmed his vision loss, so Scott and Carolyn knew he had the disease. He was too young to realize what was going on, and his parents felt no need to tell him at this time. They kept this to themselves for a couple of years. Lance continued to play on sports teams in the mean time and did pretty well, despite his declining vision. By the time he was in sixth grade though, his vision had gotten a lot worse, and his balance was also beginning to be affected. As result, sports were becoming difficult. His uncle coached his baseball team, and he humorously noted that Lance was the only boy who benefitted from the cat call, “HEY! …batter, batter…SWING!” because it actually helped him to know when to swing. Lance knew he had bad eye sight, but he still did not yet realize he had this disease.

    One evening, their family was watching a TV show that just so happened to have a storyline, somewhat along the lines of a boy having a disease and dying young. The story hit close to home, and Scott watched Lance closely. He could see that Lance was bothered by it because afterwards Lance got up and went straight to his room. Scott followed him. They visited for a bit, and then Lance asked, “Dad, do you think I have Mom’s disease?” Choking up, Scott replied, “I think you do.”  They both began to weep. Eventually, Lance began to be more concerned about his dad’s tears than his own and tried to comfort his dad, telling him that it was going to be OK.

    Lance remained optimistic, and he faced the future with an attitude of, “It’s no big deal; it will be OK.” He, like his mom, also didn’t have it in him to complain or have self-pity. His dad said,  “His method of dealing with this disease has been exemplary. He has always handled himself with perfect faith and had an eternal perspective. I have never heard him complain about his lot in life or about this disease, never once. He had plenty to complain about, and he did complain, mostly about [sports] officiating, I think, but not about this disease. He had a real knack for dropping the things he couldn’t do, finding the things he could do and making the best of things as they were. He didn’t look too far into the future and waisted no time with self-pity. That is an attribute that makes him my hero.”

    Lance continued to have a great passion for sports and played on a basketball team when he was 12, even though he struggled with bad eyesight and balance. His team had a position for him that he would play, and they let him participate when he was put into games. His stake president remembers a time when he was coaching a team that played against Lance’s team. He said,”During one game, it was towards the end and the game was close, and Lance was put in. He dribbled towards the basket; his peers on the opposing team backed away and allowed a clear path; he got his own rebound after his first shot, got the rebound again, and then made the basket. Lance won the game because no one could remember what the final score was.” This emotionally moved the stake president, along with everyone watching. It is amazing how good kids can be to each other.

    Something Lance loved more that sports was family. He was not only close with his immediate family but also his extended family. On the Flake side his dad was one of ten kids, so as a result he had a great big bunch of cousins. The Flake family had many get togethers, and Lance really enjoyed the weekend trips to his grandparents’ house in Snowflake to play with all his many cousins.  He would disappear when they got there, riding three-wheelers, horses or whatever, and he and his cousins would campout in the cedars or sleep on the trampoline. He played real hard with his family.

    Lance loved to drive things despite his bad vision. This caused some anxiety for his family. One time while driving a gocart at a family gathering he zipped around the front yard at full speed, heading for the trampoline where about 15 kids were jumping. Lance drove right underneath it! Fortunately, no one got hurt. He must have had guardian angels around him whenever he drove things.

    By his seventh grade year in junior high, Lance’s balance and vision were very bad. He did not want to be different; he wanted to walk like everyone else. However, he would careen from pole to pole and down the steps. It was a dangerous campus for him to navigate. The teachers were very afraid he was going to tumble down the stairs. Finally, the principal talked to Scott about it, and it was determined that Lance was going to use a wheelchair at the beginning of his eighth grade year. The idea of using a wheelchair and being “handicapped” was very difficult for Lance, and he resisted it in every way he could. But there was really no choice, since he could not walk anymore on his own. Scott drove him to school that first day and pulled the wheelchair out.  Lance begged his dad to not get in it, and Scott had to insist on him getting into the wheelchair. As Scott wheeled him into school, Lance was in tears; it was so hard for him. Scott held it together until he got back to the car and then wept.

    The school had assigned a teacher’s aide to push Lance from class to class. When Scott picked him up from school on that first day, Lance was distraught and told him how no one would talk to him with that teacher’s aide pushing him around. She was ruining his social life. Scott talked to the school and told them that Lance was just going to have his friends push him around.  The second day when Scott came to drop off Lance, a boy ran up to the car and asked Scott if he could push Lance to class.  Everything changed that second day.  He had many friends who were more than willing to push him to where he needed to go. This really helped Lance to not hate his wheelchair, but instead to have it become an asset in helping his social life.  Good friends can make all the difference.m

    Someone once reported to Scott that some rough characters at school where pushing Lance around in his wheelchair.  Lance drew all kinds of people to him, but he didn’t care who helped him.  He loved them all the same for helping him.  When we serve others it elevates us.  This is one reason why Lance was a popular kid, he needed help, and he was easy to help and his peers loved helping him.  For these reasons Scott didn’t mind at all.

    At a certain point Lance was no longer able to play sports, so he found other ways to participate.  One way he did this was through sports video games. They were a great way for him to experience his love for sports. Scott was grateful for video games since they helped to fill this void. Callie remembers that the family would be watching TV in the living room, and they would hear Lance holler from his room. The shouts were quickly followed by the sound of his wheelchair crashing against the door frame as he emerged from his room and further shouted, “There is 20 seconds left! I just got a touchdown pass! We are going to win the super bowl!” Then he would wheel around and push himself back into his room to finish the game.   He derived a lot of satisfaction from them.

    His cousins and friends would often come over and help him for days to configure his video game teams. You could pick your own players and put a name on their back. He would put together pro teams but would have the Snowflake High School players’ names on their backs. His real sport heroes were his peers.

    Another way he stayed involved with sports was through being a spectator. He was an avid fan of Snowflake sports. He loved being a Lobo! While he was in junior high, he had some cousins playing on the high school teams, and he began to follow them and their peers closely. In fact with his very good memory he would memorize the stats of all the players on the teams, both girls and boys sports. Lance loved the star players, but he also knew the statistics of everyone else. He was a statistic maniac. Later when he was in high school, he would write on the Snowflake website sports page.  Some of the things he wrote would be quoted on the local pregame radio show. The announcers would even talk about Lance and how he was such a good fan. Lance cared so much about these teams that he would cry if they lost, even if it was an unimportant game. He was definitely the Lobo’s number one fan.

    When Lance was around 14 years old, his dad wrote a letter to “Make a Wish” foundation and shared with them Lance’s situation. Lance was selected, and for his wish, he chose to go to Hawaii. Scott and Callie, along with a very close cousin, were all able to join him on this spectacular and memorable trip. It was seven packed-filled days of fun. They spent a lot of time on the beach and in the water. They even got to take a helicopter tour of the island. They all had a really good time. Lance’s mom, Carolyn, was unfortunately unable to accompany the rest of the family on this trip. It was really hard for her to stay home and miss out on this experience.

    Lance had the sweetest relationship with his mom. She loved to hear all about his life, and Lance loved telling her about it. She relied on him for information when she could no longer see, and Lance talked with her a lot. They were very close.

    When Lance was a Sophomore in high school, his mom started to really struggle. Hospice came into their home to help Carolyn for the last week of her life. The nurse could see that she did not have much time left, so Lance, Callie and their dad  slept with her that night. It was a very sweet and peaceful time for their family. The next morning Carolyn passed away.  It was very hard for Lance to lose his mom. He did not like talking about death or the fact that the disease was terminal. Not that he was afraid of death, but he just did not like to talk about it. Lance’s cousin wrote a song about Lance’s life, and I think he captured very well how Lance felt during this time: “Your mama she loved you, but not a soul alive could undo the hole in your heart when her bones went to sleep.”

    A year after Carolyn passed away, Callie left to attend Brigham Young University. Lance was sad to have her go. At this time Callie was fairly progressed in the disease. She was at the point that her eyesight was very limited and she needed assistance, like holding on to someone else’s arm to walk. During a break in school, she came home to visit. While talking with Lance in his room, he told her that he was afraid that she would get married soon and move away for good. Callie reassured him by saying, “I don’t think I will. Boys are kind of afraid of me.”  Lance then asked, “So are girls afraid of me?” She responded, “I think so.” Lance then responded, “Well then, after we die and during the millennium, everyone will want to get a divorce to marry us.” Callie admired his self-confidence and eternal perspective.

    Callie once told me, “Lance and I have always been close since it is just the two of us. We didn’t fight much and spent a lot of time together. He has always been a good brother that I have looked up to. Lance has always been an inspiration to many people. Our whole town thinks he is an amazing person. He is very happy. I will walk into his room, and he will be laying there smiling. He hardly ever feels sorry for himself. He goes to school everyday in a wheelchair; he has to ride home on the handicapped bus sometimes; and he has  to take special classes that are different from everyone else. I know this disease must be really hard for him, but I’ve only heard him feel sorry for himself a couple of times. Yet he is so happy. He is just an amazing person.”

    Next blog post: Cousin Lance Part II

  • My dad is an amazing speaker. Many of the talks that he has given throughout his life have had a significant impact on me, especially this one. When my dad gave this talk at Carolyn’s funeral, I had just graduated from high school. At this time my mom was in a wheelchair, and life with this disease was becoming very difficult for her. We also knew that my younger sister Aubree had SCA7. She had bad vision but no balance issues. I was scared for her, as was my entire family. My cousin Lance at this time was in a wheelchair, and my cousin Callie was beginning to have balance issues. I really did not like seeing my immediate and extended family struggle with this disease. While I did not know if I had the disease at this time, I suspected that I did.

    During this time, I had a lot of emotional struggles. First of all, I felt like the disease was way too much for God to ask. It is plenty hard for one person to have to have to face a life with SCA7, but for all of these people who I loved so much? Again, it just felt like way too much to ask. I wondered if God really loved and cared about my family and me.  I also felt scared about the future, not just for me, but for my mom, sister and cousins.

    I have been to a lot of funerals, and at all of them I have strongly felt the Spirit of God. At Carolyn’s funeral in particular, the spirit was powerful. When my dad gave this talk, I was filled with hope and felt that things were going to be OK. My dad’s faith in Christ and eternal perspective were a great comfort to me. I hope you enjoy this talk as much as I have.

     

    CAROLYN CANFIELD FLAKE

    by Rick Balling

    When a loved one dies, especially at a relatively young age, our hearts and minds fill with questions. Big questions.

    Where is Carolyn now?

    When will we get to see her again?

    What will she look like?

    Why didn’t the Lord make her better?

    Why did the Lord take away our mother, our wife, our sister, our daughter?

    On the surface, it may not make any sense to us. But if we ponder and look deeper, we can make sense.

    Everyone that knows me knows that I am obsessed with fishing, and in fact, it is impossible for me to give a talk without saying something about fishing. The first time I saw the magnificent salmon in Alaska, I was amazed at their tenacity. After four or five years, the salmon return to the rivers to spawn. As they enter the fresh water streams, they stop eating, and their bodies begin to decay. They are driven to spawn, and these beautiful fish may swim hundreds of miles. After they have laid and fertilized their eggs, they simply waste away in the stream-beds. Their flesh softens to the point where you can poke a hole through their bodies with your index finger. Finally, they die and their carcasses pile up on the riverbanks and sandbars. In fact, if you visit Alaska in September, you are overcome with thousands and millions of dead King, Red, Silver, Chum, and Pink salmon everywhere along the rivers. It is a depressing sight and the odor is terrific. You exclaim, “What a waste of life — it doesn’t make any sense”.   But if you look deeper, you realize that these dead carcasses sustain life in Alaska. The grizzly bears, the bald eagles, the foxes, and other animals depend on the food found in these carcasses before the long winter hits.   The fish in the streams including the newly hatched salmon fry also feed on these carcasses, and thus the parents literally give everything for their young. I have visited Alaska several times in June at the start of a new summer, and I am continually amazed that there is no sign whatsoever of the carnage from the previous season. Not a single bone or shred of evidence can be found — everything has been used, and the annual cycle of life begins again. Everything follows the marvelous plan of its supreme design. Our lives, too, follow a marvelous plan called the plan of salvation. This plan has been revealed to us by prophets, and we can understand it and make sense of life and death.

    We lived before this life with our Heavenly Father and Heavenly Mother in the pre-existence. We were spirits. Our heavenly parents had resurrected bodies. Only a resurrected body can receive a fullness of joy. We wanted to become like our parents. We wanted to grow up. Therefore, our parents decided to send us away to school. That’s why we came to this earth. We received our bodies, and we are here to learn how to become like our parents. “Be ye therefore perfect, even as your Father which is in heaven is perfect”. You could say that we are all enrolled in Godhood 101.   This earth-life is a carefully designed closed-book testing center where we learn by experience. When Joseph Smith reached the end of his rope in the Liberty Jail, the Savior told him “all these things shall give thee experience, and shall be for thy good”. Even the Savior had to learn by experience. Are we greater than he? What if Heavenly Father decided to cancel the whole idea of creating an earth and simply give us a big lecture in the pre-existence on how to be like him? It would certainly have been less trouble for him. However, I’m afraid we wouldn’t have learned a darn thing. Real learning requires experience, and experience requires opposition, free-agency, consequences, trials, problems, sweat, and pain.

    I have learned by experience that teenagers learn by experience. Let me tell you about my son, Dan. One day before his mission he brought home an old beat up car and told me that he and his friends had a great idea. They got this car dirt-cheap and they were going to fix it up and sell it and make a lot of money, basically without having to work very hard. Easy money. I lectured him on the law of the harvest, and that there is no such thing as a free lunch, but I could see that he was not learning. The car didn’t have license plates because it couldn’t pass the state emissions test. Occasionally, they would hop in the car and go somewhere. I warned them that they were taking a big chance by driving around in a car without license plates. But again, they were simply not learning from my preaching. Sure enough, I got a phone call one day from one of Dan’s friends. He needed to get to work, and he jumped into the old car that was conveniently parked outside. A policeman pulled him over and impounded the car on the spot. He was given a court date. Three months later when the court date arrived, he appeared before the judge and was fined $750. He then went over to the impound lot only to learn that they charged a $15 a day for the car that had been there for three months. Let’s see, 90 times 15 is $1350. Fortunately, when they went to get the car, it had been stolen from the impound lot, so impound fee was waived. Dan and his friends learned from this experience. After I repeatedly told him, “I told you so”, he exclaimed in exasperation, “Look dad, you got to be young and stupid before you can be old and wise”.

    Now, look at the particular homework problems that the Lord assigned to Carolyn. Not many of us can possibly know what it is like to experience the loss of eyesight. What would it be like to lose the ability to walk? How would it be to have to depend on others for almost everything? To slowly lose control of your emotions and thoughts. And then to see both of your children struck down with the same affliction. Only the Savior himself knows the burden Carolyn had to bear.

    Was all this imposed because Carolyn was a particularly rebellious spirit that had a lot to learn in this life? Even though Carolyn was known to be feisty at times, I don’t think this was the case. Were the Savior’s burdens imposed on him because he was rebellious? Of course not. The purpose of the Savior’s burdens and Carolyn’s burdens were mostly for the rest of us. We need to know that people walk the face of this earth and get through incredible things. We need to know these people up close and personal. We need to learn by serving them. Looking at the burden Carolyn bore gives us a glimpse of the burden that the Savior bore, and suddenly our own issues seem puny indeed.

    In the world today, fame is awarded to athletes, movie-stars, singers, presidents, senators, and the like. Even in our church we often wrongfully attach prestige to callings. But who are the real heroes? If we could see on the other side of this one-way window called the veil, and observe the throngs of angels, spirits, and heavenly beings watching us in this Superbowl game called Earth Life, who do you think they would consider for MVP? I think Lance would get a lot of votes. So would Callie and Scott. And Marlene and Cindee, and of course, Carolyn, Cathy, and Paul. What a privilege we have to know and play along side these MVP’s. They are the salt of the earth.

    Who did the Savior spend his time with when he was upon the Earth, both in Jerusalem and in the Americas. He was with the sick and afflicted. If he were on the earth today, I think he would be right here in this chapel in Snowflake, Arizona rather than in the White House.

    About ten years ago, our family was traveling through Wyoming, and we took a detour of about ten miles on a dirt road to the Willie handcart site at Rock Creek near South Pass. There are no trees around, just sagebrush. There was a small rectangular area roped off with a little plaque listing the names of 14 people who had died in one night and were buried there. I gathered my family and wanted to say something to them, but I found that I couldn’t speak. I don’t think that had never happened to me before. My brother took over and said something, and we left. Eight years later, our ward trekked out to Martin’s Cove and pulled handcarts. We met in Martin’s Cove with a brother Kitchen from the Riverton, Wyoming stake presidency. He told us stories of the many saints from the Martin Handcart company that died in Martin’s Cove. He told us how the Church was able to recently acquire that property, and that President Hinckley came out to visit the site. The prophet walked back into the cove and later came out and told them, “This is sacred ground”. Brother Kitchen then told us some stories from the Willie Handcart company. The story that stuck out in my mind was the story of James Kirkwood, age 11, from Scotland (retold by President Faust in July, 2002 Ensign). On the trip west, James’ widowed mother and older brother Robert had to pull the handcart carrying his other older brother, Thomas, who was crippled. James’s responsibility on the trek was to care for his little four-year-old brother, Joseph. As they climbed Rocky Ridge, it was snowing and there was a bitter cold wind blowing. It took the whole company 27 hours to travel 15 miles. When little Joseph became too weary to walk, James had no choice but to carry him piggy-back. Left behind the main group, James and Joseph made their way slowly to camp. Imagine, an 11-year-old boy carrying his brother piggy-back, 15 miles over Rocky Ridge, in a snowstorm. When the two finally arrived at the fireside, the journal says: “James, having so faithfully carried out his task, collapsed and died.”   James Kirkwood is one of the 14 people buried at Rock Creek. President Hinckley also visited the Rock Creek site. He went off on his own and came back and told the stake presidency that this was hallowed ground. Later the stake presidency was pondering why the prophet had used the term “sacred ground” for Martin’s cove and “hallowed ground” for Rock Creek. They wrote a letter to the first presidency asking the difference between sacred and hollowed ground. They got a response from President Faust. Sacred ground is where saints have given their lives for the Kingdom of God. Hallowed ground is ground where the Savior has walked. No wonder I couldn’t speak when I first visited that site. Indeed, the Savior walks with those that bear heavy burdens.

    Let me close with an experience I had a few years back high in the Stone Creek Basin of the Wind River Mountains of Wyoming. My family has heard this before, but my daughter Mandee suggested that I bring it up again. While I was laying in my sleeping bag, I was awakened in the middle of the night by the sound of cannons in the distance. The light flickered on the side of my tent. A storm was approaching. I lay there motionless for several minutes and listened as the sound of the thunder grew stronger and stronger. My father lay in the sleeping bag next to mine, and his steady snoring indicated that he was fast asleep. But after awhile, the sound of the thunder caused his snoring to stop, and I knew that he was also lying there motionless, listening to the approaching storm. When it hit, it hit hard. The gusts of wind caused our dome tent to deflect down near our faces. Especially terrifying was the thunder and lightning. At such a high elevation, it seemed as if every lightning strike hit the ground or the lake, and I’m sure many of them did. I think that when these storms are forced to climb up high mountains, it puts them in a particularly nasty mood. With each thunder-clap, I could hear my sons and nephews in the nearby tents hoot and holler. Then it started to hail with great intensity. We feared that it would literally rip our tent. When we placed our hands up against the tent, the hail would sting.

    I have a book of cowboy poetry, and without question, my favorite is a poem by Baxter Black where he calls such storms “The big high and lonesome”:

    When it hit it hit with a fury                                                                                                                           The wind had its saber unsheathed                                                                                                             The lightning cracked and the sky split apart                                                                                        The storm was a barin’ its teeth                                                                                                                   The blackness shook like a she-bear                                                                                                     Whose raging made my heart run                                                                                                               The hail fell like bullets around me                                                                                                      Scattering dust like a gun

    Suddenly, as if someone flipped a switch, the hail stopped. The intensity of the thunder and wind began to diminish. The storm passed by until, again, it was only the sound of cannons in the distance. The steady snoring of my father started up again. I just lay there. I unzipped the window of the tent, and to my astonishment, the sky was filled with stars. It was breathtaking. The moonlight shone bright on my face….The big high and lonesome is only God’s way …. of putting a man in his place.

    Scott, Lance, and Callie. Storms are only God’s way of teaching us and those around us. Storms don’t last forever. The day will come when the sky will be filled with stars. Scott, you remember Carolyn when you were first married before she was saddled with this disease. She is waiting for you, and for Lance and Callie. You will yet have many wonderful experiences together….a fullness of joy. Brothers and sisters, behold, today we are in the presence of a latter-day saint, even Carolyn Canfield Flake. She has carried her burden up and over Rocky Ridge. As she always told you, Scott, you are lucky to have married her.

  • Carolyn was an optimistic person.  It was not in her nature to complain or feel bad for herself. As the disease progressed, she lost many abilities including her eyesight and went completely blind fairly early on. She continued to cook though for as long as she could. She would prop herself up against the kitchen counters to cook. Occasionally the family got a surprise in their dinner. They once found a measuring cup in a casserole and another time a dish rag in the spaghetti. Carolyn laughed about it with the family and did not feel embarrassed.

    Carolyn was also a hard worker. She tried very hard to keep her independence for as long as she could. One example of this was seen in her efforts to do household chores. She would scoot around the house on her bum, picking up clutter and collecting the laundry. Then she would pull herself up to the washing machine and do the “sniff test” to determine if something was clean or dirty. She wore out the seat of her pants very quickly since she scooted around so much.

    In their new house in Snowflake, they had enough land for Scott to have some horses. Carolyn loved being around animals. In fact throughout her life she always wanted animals, especially unusual ones. For instance, these are some of the animals she wanted: zebra, goat, guinea pig, miniature donkey, peacock and turkey. Once during a Pioneer Day celebration, her sister-in-law, Loraine,  was staying with them. Everyone had left for the activities, but Carolyn stayed behind since it was going to be too hard for her to go. As Loraine was walking out the door, she heard Carolyn calling, “Scoooootttt!” over and over. She went in to her room and said, “Scott is already gone Carolyn. Is there something I can help you with?” Carolyn said, “Oh. I just wanted to tell him that I want a miniature gerbil at the fair.” Lance used to joke that an audio recording of a barnyard would make her happy.  They once got a new dog and while everyone was around holding it, she said, “Wow, he is really soft!” Lance replied, “Mom, you are rubbing my head.” Again, she laughed along with everyone else.

    Another time Scott found the coolest miniature horse named Ed. He bought it and was very excited to show it to Carolyn.  Scott sat her on the grass and told her that she would not believe how small it was. Then, he went to get Ed. As she sat there eagerly in the sun, their little wiener dog ambled over, climbing onto her lap. As she petted it she exclaimed excitedly, “Oh, it is small!” In the end, she enjoyed having these neat animals around for visitors to enjoy which promoted interaction, something she loved.

    Cousins; Dan, Aubree, Lisa, Mandee, Callie

    Carolyn loved holidays. She worked hard to make them special and would get very excited about them. On Christmas morning, Scott would get annoyed when Carolyn would wake up at 4 in the morning and try to wake up the kids. On St Patrick’s day she would make key lime pie. On Easter she would put candy in eggs and scoot around the house to hiding them. She would then scoot into the kids’ bedrooms and wake them up. Callie said that sometimes they would find eggs in the middle of the floor, but she said it was still so much fun. Carolyn also made their birthdays extra special. Callie and Lance really loved this about their mom.

    Carolyn eventually lost her ability to keep up with the household chores. Her family began to help out where needed, but she continued to do whatever she could. Callie, at a fairly young age, began to help with the cooking as her mom gave step by step directions. Callie would also help with the grocery shopping using a list her mom made that had everything in order, row by row, at the local grocery store which Carolyn had memorized. She knew where everything was. Someone could be pushing her down an isle, and she would say, “Stop. The canned black beans are right here on the middle shelf.” It was amazing. With everyone helping out, they were able to keep up.

    Carolyn’s many friends and extended family also did a lot to help take care of her. One friend watched many musicals with her, which she loved, and would narrate them to her. Another friend read her The Work and the Glory series over several years, along with other books. Many brought in meals for their family and did a lot to help make her life easier. Those who helped and associated with her took great pleasure in it.

    Scott and Carolyn had a sweet relationship. Scott is very funny and would often playfully tease Carolyn. She enjoyed this attention; it made life more fun. For example, Carolyn was a very careful bargain shopper and loved getting a good deal! When shopping at the grocery store with Carolyn, Scott would occasionally say while pushing her down an aisle, “Oh wow! That is an incredible deal.” Then he would keep right on walking and pushing her. She would get all excited and then flustered that they passed by it…not knowing what it was. Scott was teasing her, of course.

    Scott loved to inform Carolyn about the great deficiencies of Utah vs. Arizona. When they would travel back and forth from Snowflake, AZ to Bountiful, UT he would make a great production of feeling better or worse depending on which border they had crossed. Carolyn never let him get away with denigrating her home state though. She fiercely defended Utah, which only made him try harder to make Arizona sound glorious.

    Callie remembers her dad teasing her mom about her family, the Canfields. When he would turn on the electric can opener, he would announce, “The Canfield family singers.” When teased, Carolyn would just smile, laugh and say her familiar, “Oh Scott.”

    It was sweet to see Scott and Carolyn’s great love for each other. It was a familiar sight to see Scott’s head in Carolyn’s lap and her rubbing his head with her long fingers. She loved taking rides with Scott on his motorcycle. They did this up until the last couple months of her life. Scott took care of her so selflessly and with a cheerful heart. It was truly beautiful.

    A great gift that Carolyn possessed was the ability to listen. This especially benefited her children. She wanted to know every detail that went on in their lives.  When they would get home from school, she would very eagerly be waiting for them and want to hear everything about their day! She listened to them with a lot of interest. One time she got very upset, right along side Callie,  at a little girl in Callie’s class that did not compliment her back after she first complimented the girl. Lance would sometimes tease her by responding with a one word response like “good” after she had asked him about his day at school, then seeing her disappointment, would gladly tell her everything. She stayed very connected and involved in their lives.

    One of Carolyn’s and Scott’s greatest fears was that their children might inherit this disease. Oh how they hoped that their children would escape it! When Lance was in second grade, Scott had gone out one evening to get the mail and found a letter from the school nurse. Curious yet nervous, his heart began to race as he opened it. It said that Lance had failed the school eye exam and needed to get his eyes checked. Dread swept over him and tears began to fall. He knew that this most likely meant that Lance had inherited the disease. This was a total shift in their hopes for Lance’s future. Now, he would have to face the trials of this disease at a young age, and it was going to progress quickly. Scott took some time to recoup before he went home and privately told Carolyn. They both wept.

    They decided to go ahead and get his eyes checked by a family friend that was an optometrist, since there was still a small chance that he would just need glasses. Scott and Lance drove to their family friend who checked his eyes and confirmed that glasses could not help; he was going blind. Carolyn and Callie were at home, nervously waiting for their return. Callie remembers her mom saying, “I hope so bad he doesn’t have it.” When Lance and Scott walked in the room, Callie knew the outcome by the look on her dad’s face, and she too was devastated by this news. Scott and Carolyn went for a difficult drive together to weep and talk. Lance was too young to realize what was going on, and Scott and Carolyn decided not to tell him yet. They came back with a new bike for the unsuspecting Lance. This was a very hard time.

    Later on, Lance began to realize that he had the same disease as his mom. He handled this remarkably well and seemed to be more concerned about comforting his parents in their sadness. He was optimistic, and he faced the future with an attitude of, “It’s no big deal, it will be OK.” He, like his mom, also didn’t have it in him to complain or have self-pity. Their inner strength is inspiring.

    Carolyn and Scott thought that Callie had escaped this disease since she was older than Lance and had not yet shown any signs. Plus the odds of them both inheriting it seemed too high. In her seventh grade year, Callie began to notice that she was having a hard time seeing the board at school. Upon realizing her eye sight was bad, she knew she had this disease. She was OK with it, but she did not tell anyone. She knew it would devastate her parents given what she experienced with Lance. She was able to keep it a secret for over two years.

    At the beginning of ninth grade she wanted to try out for the basketball team, but that required a physical (including an eye test), so she didn’t try out. Then at the end of that year, she really wanted to try out for cheer, but again she knew that a physical examination would be required. She decided to do it anyways, since she couldn’t keep it a secret forever . Callie and her dad went to the doctor to get the physical. Scott said that he (and I assume Carolyn too) lived in mortal fear whenever their kids got their eyes tested. They must have been so worried while Callie was having an examination that included an eye test. The doctor did in fact test her eyes which revealed bad eyesight. The doctor told this to Scott, and again, he was filled with dread. Callie began to cry and told her dad that she had known for the past two years. He was surprised, but again the child was more concerned about the parents and how hard it was for them.

    Scott came home and told Carolyn, and again they wept. Finding out that their children has this disease was so devastating and the hardest point in their lives. All parents have hope for their children and what their lives might be like. This disease completely shifted all of this. They would die much younger, facing the debilitating effects of this disease, probably not get married and so on. This was a very difficult reality to face. Yet they faced it with faith. Life went on and they tried to make it the best they could.

    As Callie and Lance got older, Carolyn, especially, got excited about their dating. Whenever they got asked to a school dance or out on a date, she would get very excited. Once when Callie got home from a date, Lance was teasing her about kissing the boy. Carolyn chimed in, “I know Callie didn’t kiss him, but I wish she would have.” Towards the end of Carolyn’s life, when Callie was in High School, Carolyn had become very weak and was unable to do much. She would often be lying in bed when Callie got home. Callie would go lay next to her mom, telling her about her day and everything going on. Carolyn continued to be very interested and get so excited for the good things that happened. Callie cherished this time with her mom.

    Family coming to visit; (left to right) Scott, Carolyn, Dan, Mandee, Marlene, Lisa, Aubree, Callie -Front; Lance, Cindee

    Carolyn was also a great listener whenever extended family or friends came to visit, which was often. She loved to hear all about what was going on in their lives and would ask many questions. She was good at keeping confidences when necessary, but also enjoyed sharing their good tidings, funny stories (of which the large Flake family has many!) or important news with others when appropriate. She found great joy in this. For example, a sister-in-law once intentionally told Carolyn first that she was pregnant, so that Carolyn could then be the one to share the news with everyone.

     

    Carolyn did have to face depression, but it was never severe. She took Prozac for the last five to six years of her life. It really helped her, and she had no major issues with depression. What a blessing.

    Eventually eating on her own became difficult. Her family had to feed her all her meals; they helped to do this for approximately four years. Fortunately, Scott had a job where he was able to come home and eat lunch with and feed Carolyn. Towards the end, her ability to eat enough food each day became very difficult, and she was so uncoordinated that she would often chew on her tongue and make it bleed. She began to lose weight and grew very weak. She spent a lot of time in bed. She eventually got down to 80 lbs.

    The time came for hospice to assist since she was eating so little. The hospice nurse was a close family friend, and they had a very good experience with her there. She was with them for the last week of Carolyn’s life. During that week, the nurse gave her morphine to help with the pain. Carolyn stopped eating and drinking at this point.  When the morphine wore off, Carolyn would give a hand signal to let them know. It was a blessing for her to have this to help her be more comfortable. The nurse knew that Carolyn was at the end and informed the family, so Scott, Callie and Lance were around her as she peacefully passed away.

    It was very difficult for them to say goodbye. It was such a great comfort to know that they would be with her again. Callie and Lance, as youth greatly missed their mother.

    She passed away in the middle of Callie’s senior year of high School. A couple of months later, Callie was sitting in a class when they announced over the intercom the prom queen and king nominees. She thought she heard her name but was not sure so she asked around. When she found out that her name had been listed, she could not contain her emotions and asked the teacher if she could go to the bathroom. When she got there, she burst into tears because she could so clearly see her mom shouting for joy and telling everyone. Callie did win prom queen, and she knew her mom was overjoyed for her.

    Scott said that Carolyn was somehow equipped with the ability to deal with this disease with the positive attitude she had. While looking back on their life together, he said, “I wouldn’t choose for her to have this disease, but I would never trade those 20 years with Carolyn. I don’t feel sorrow, I just feel happy about the time I had with her. It was a wonderful experience.”

  • I am really excited to tell the story of my Aunt Carolyn and her two children, Callie and Lance. They, along with Carolyn’s husband, Scott Flake, are the neatest family I have ever known. They all had to endure such extremely heavy trials, yet their home was full of laughter and happiness. Whenever I visited them, I felt uplifted and wanted to linger. They have all had a huge influence on me. I have often looked to their examples. Their lives were so sweet and good despite having this disease. It is truly remarkable, and I am excited to try to capture it all.

    Included in this family is Scott’s current wife, Sara, who graciously took care of both Callie and Lance during the end of their lives after Carolyn had passed away. Also included in the family are Scott and Sara’s two daughters, Rayni and Ella, who were Callie’s pride and joy. They are all such a wonderfully bright part of this family.

     

     

     

     

     

     

     

     

    Carolyn was the fourth daughter of my grandparents Paul and Marlene. She was a happy, sweet, confident yet humble person. She had a very deep and wise perspective on life.  Chris’ and Don’s deaths along with her dad and Cathy struggling with the disease had a significant influence on her. She once wrote, “Our Heavenly Father does not want everything in life to be great and wonderful. We need trials to help us grow.”

    When Carolyn started college she did not know if she had the disease or not, but her eyesight was just beginning to be affected. She met Scott at BYU-Hawaii. Carolyn had been attending Dixie Collage for over a year.  She had always wanted to attend BYU-Hawaii, so when some of her friends wanted to go there for the Spring Semester, she was eager to join them. Scott had just gotten home from his LDS 2 year mission. Some of his friends were going to BYU-Hawaii for the Spring semester too, and he decided to join them. The two met at a dance during the beginning of the semester, and their relationship began to blossom from there. They would take many long walks around the island and talk. What a beautiful place for a beautiful relationship to begin!

    Carolyn told Scott about the disease in her family and of the possibility that she too could have inherited it. Scott understood, in part, about the gravity of this, and he still continued to see her and fall in love. When the semester ended, Carolyn went home to Utah and Scott to Arizona. They kept in touch through phone calls and letters. By the next month, Scott decided to take a trip to Utah to visit her.

    Carolyn had just recovered from pneumonia, so she was pale looking, unlike her tan self in Hawaii. My grandpa was having to use a walker at this point and spoke with his whisper. Cathy also was very affected by the disease. When Scott arrived, He seemed to be OK with these things. They were all so good and nice to him, and he saw that their lives still seemed pretty normal. Until one time when he was sitting on the porch swing with Carolyn, and Cathy was in the bedroom upstairs with the window open having a singing lesson. It sounded awful, and he knew it was because of this disease. For Scott, this was a window into the disease and its implications, and it scared him. Sadly, he left Utah telling Carolyn that they were too different for it to work out.

    Carolyn was hurt but tried to get over him. Scott also tried to get over Carolyn but was unable to do so. Later that summer Carolyn got a phone call from him saying that he was in Utah with his family at Aspen Grove. He wanted to see her. They got together and things went so well that the next day Scott told Carolyn he loved her. They were soon engaged and then married in the Jordan River temple. Before Scott married Carolyn, he was fairly certain that she had this disease. He felt that he would be lucky to have even a limited number of years with Carolyn before the disease would take her. What a great guy!

    They moved to Mesa, Arizona where Scott attended college. Mesa was so hot! Carolyn detested the heat there, so she called it “piggy” Mesa. You have to know that Carolyn was a very good and pure person, so much so that the closest thing to a bad word she would ever say was “piggy.” Not long after they moved to Mesa, Carolyn lost her driver’s license because of her declining eyesight. Now they both knew for certain that she had the disease.  They went to a geneticist to talk about having children, since they knew that this disease could be passed on to future children. Not a whole lot was known about SCA7 then, but the geneticist did know that there was a 50% chance of passing it on. This made having children a big decision, so they prayed and fasted for direction from God. They received an answer to go ahead and have children. The answer was not that your children would be free of this disease, but that it was the right thing for them to go forward and have children. My uncle Scott always says that he has no regrets and is so thankful they decided to have Callie and Lance, despite both inheriting this disease. Even having the disease, they had such wonderful lives. Lance even said that if he had the choice, he would choose to have the disease because he wouldn’t want to change anything. Remarkable!

    Not much time passed before Callie was born. She was a beautiful, healthy and thriving baby. A couple of years after Callie’s birth, Lance joined their family.  While the kids were young, their parents did not know they had this disease and greatly hoped that they would not! Carolyn and Scott just adored their children. They were both wonderful parents, and Carolyn was especially good at being a caring, loving and devoted mother. Her relationship with them was very special.

    Callie and Lance were young while their family moved around Arizona for Scott’s schooling. They lived in Mesa, Pinetop, and Prescott Valley.  During this time the disease progressed for Carolyn. She went from being able to walk on her own, to needing help walking, and then to eventually using a wheelchair. She did not like having to use a wheelchair and just used it outside the house. Inside she scooted around on her bum. Her eyesight also declined and became very limited during this period. Due to her disabilities, she needed a lot of help from others. She was not afraid to ask others for help and did it in a kind way such that people were eager to help her. Their service blessed her life, but it also blessed them (those who served her). Through these experiences she made many good, close friends and some stayed in contact and continued to help her all her life. Like weekly trips for ice cream and so much more. It was beautiful.

    While they lived in Prescott Valley, their church ward brought in meals for them regularly, in an effort to try to help. Carolyn loved the friendly church ward there, but she and Scott felt bad since Carolyn could still cook. One day Scott was getting in the car with Carolyn and the kids, and he thought it would be fun if he let Carolyn drive while he helped to steer from the passenger seat. In fact, the whole family thought this was a fun idea. While they traveled down the street with Carolyn driving, the Relief Society president saw them and did a double take when she realized Carolyn was driving with a look that said, “Have they been lying about Carolyn?” They all laughed about it. Life had its challenges, but Carolyn was a happy and fun-loving person, along with her family as you can see.

    Scott got a job near Snowflake, his hometown, after finishing school, so the family excitedly moved there. Scott began to build a beautiful home in the middle of “Flakeville.” This is a neighborhood just outside of town, or out in the country, where  his parents and other family live. It was full of Flakes. Scott comes from a very large family and now they were going to live right next to many of them. Scott finished their home, and they made their final move. This was a busy yet exciting time. Carolyn loved Scott’s big family and loved all their many get togethers. They and the kind people in the small town of Snowflake, were a wonderful help to Carolyn and her family. This was the perfect place for them to live.

    While Carolyn loved living by Scott’s family, she did miss her family. She talked with them often by phone and enjoyed going to visit them in Utah whenever possible. They made many trips there. She had a special relationship with her dad, Grandpa Paul. He had a hard time communicating with others, since he could only whisper. He really craved conversation with others. When visiting, she would go sit on his bed, and he would talk nonstop until he couldn’t talk anymore. Carolyn would just sit and patiently listen to him with great interest. It was very sweet. He passed away when Carolyn was living in Snowflake. Two years previous her sister Cathy passed away. She was extremely sad to say goodbye to them, while at the same time, she was happy that their suffering had ended. She knew that she was going to be with them again.

    Later, when the surviving members of Carolyn’s family (Carolyn, Caren, my mom and my grandma) would get together, they would talk, laugh and cry as they reminisced. I remember when I was young and the Canfield family would get together. We cousins would be off playing and having a blast, then we would walk into the house to a scene of all the moms and grandma bawling their eyes out together. This seemed to happen every time they got together! They had some great things to talk about as half of their family was on the other side. Together, they must have had a burning knowledge that life continues after death and that there is a plan and purpose to it all.

    Through it all Carolyn had an eternal perspective and a great sense of her divine worth. She knew her physical limitations; she received the service that her family and others rendered her; she knew something about the burdens her husband carried, yet she was not apologetic. She truly believed that Scott got a real bargain in marring her. This is amazing for someone who had to become dependent on others for nearly everything. In these very humbling circumstances, she saw this disease for what it truly was – a way for her loving Heavenly Father to teach her and all those within her influence to grow and become more like Him.

    Scott, who was closest to Carolyn, definitely learned and grew because of this trial they had to face together. Scott’s older sister Loraine, has told me of the growth she witnessed in Scott during his marriage to Carolyn. She said, “I watched Scott bring fun and lightheartedness to what was sometimes a grim daily survival for Carolyn. I watched Carolyn’s deep goodness and faith bless Scott as she accepted his daily service. Scott allowed his faith to grow. He rebounded from occasional impatience and despair. He mellowed and deepened in character and integrity. The reach of his compassion and kindness, because of his experiences with Carolyn, continue to bless all around him.”

     

    Next blog post:  Carolyn, Part 2

     

  • The love that comes from giving ourselves for others is truly remarkable. “Whosoever will save his life shall lose it; but whosoever shall lose his life for my (Jesus Christ) sake and the gospel’s, the same shall save it.” Mark 8:35

    Saving yourself is gaining love, real pure love, the pure love of Christ, charity.

     

    More to come…

  • Without hope life is very bleak and dismal. Jesus Christ is the source of all true hope.

     

    More to come…

  • A knowlege of the Plan of Salvation has become like a North Star to my life. This perspective has changed everything for me. It helps me to see things as they truly are. It brings joy, peace, purpose and love to all I do and see.

    More to come…